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  • Writer's pictureMagdalena Jedowska

Step-by-Step Ultimate Guide for Parents on Autism Assessment and Diagnosis.



A boy with the ear defenders under the writing dealing with an autism diagnosis

Hello to all the Readers of my Autism blog. Feel at home if you're new to this place. We are dedicated to providing valuable information, advice, and insight on Autism and other special needs.

The Parents frequently asked me questions about the assessment and diagnostic process in the UK. Following their requests, I gathered all possible information about the process of assessing Autism and possible diagnoses.


 

Getting an autism diagnosis for your child in the UK involves several steps and requires navigating the healthcare system and various professionals. Here's a guide for parents and carers on the process:


1. Initial Concerns:

  • Recognise Early Signs: Be observant of your child's behaviour and development. Early signs of autism may include difficulties with social interaction, communication, repetitive behaviours, and sensory sensitivities.

  • Seek Guidance: If you have concerns, consult your child's paediatrician, health visitor, or school staff. They can provide initial guidance and may refer you to a specialist.

2. Referral to a Specialist:

  • Visit Your GP: Schedule an appointment with your General Practitioner (GP) to discuss your concerns. Be prepared to provide specific examples of your child's behaviour and development.

  • Referral: Your GP may refer your child to a specialist for assessment. In the UK, autism assessments are typically conducted by Child and Adolescent Mental Health Services (CAMHS) or Developmental Pediatricians.

3. Assessment Process:

The educational psychologist assessment of the child.

  • Multi-Disciplinary Team: The assessment is typically conducted by a multi-disciplinary team, including clinical psychologists, speech and language therapists, occupational therapists, and developmental paediatricians.

  • Developmental History: You will be asked about your child's developmental history, including milestones, behaviours, and any concerns you have observed.

  • Observations: Professionals will observe your child's behaviour, social interaction, and communication skills during the assessment.

  • Questionnaires: You may be asked to complete questionnaires about your child's behaviour and development.

  • School or Nursery Input: Your child's school or nursery may be sought to understand their behaviour and social interactions in different settings.

4. Diagnosis and Feedback:

  • Feedback Session: Following the assessment, you will have a feedback session with the assessment team. They will discuss their findings and provide a diagnosis if applicable.

  • Autism Spectrum Disorder (ASD) Diagnosis: If your child is diagnosed with ASD, the team will discuss your child's specific characteristics and needs.

5. Post-Diagnosis Support:

  • Education and Interventions: Based on the diagnosis, the team will provide recommendations for educational and therapeutic interventions tailored to your child's needs.

  • Support Services: You may be referred to support services, such as speech and language therapy, occupational therapy, or autism-specific support groups.

6. Educational Support:

  • Education, Health, and Care (EHC) Plan: If your child's needs are significant, you can apply for an EHC plan to ensure they receive appropriate support in school.

7. Additional Considerations:

A calculator, glasses and a pen next to a notebook

  • Accessing Benefits: Depending on the severity of your child's condition, you may be eligible for disability benefits, including Disability Living Allowance (DLA) or Personal Independence Payment (PIP); if your child is 16 and over, Carer's Allowance, Universal Credit, Child Tax Credit (CTC), Working Tax Credit (WTC), Direct Payments (DR). Check with the Department for Work and Pensions (DWP) for details.

  • Advocacy: Consider joining autism support organisations and advocacy groups to connect with other parents, access resources, and learn more about navigating the system.

It's important to note that getting an autism diagnosis can vary depending on your location within the UK and the specific healthcare provider you work with. Waiting times for assessments can also vary, so it's a good idea to inquire about expected timelines early in the process. Unfortunately, the process of getting a diagnosis can be lengthy.

Remember that obtaining a diagnosis is the first step in accessing appropriate support and services for your child. Be patient and persistent in advocating for your child's needs, and seek out local resources and support groups to connect with other parents who have gone through similar experiences.

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